Get clinical and research updates, read member stories and find out how you can get involved and support us.
Many people with adrenal insufficiency, including Addison's disease, are still receiving only one-month supplies of essential steroid medication, creating challenges for self-management and patient safety. Explore the ADSHG's survey findings and access practical resources to help you work with your healthcare team to secure a three-month prescription.
2 February 2026
For many people living with Addison's disease and adrenal insufficiency, achieving the right hydrocortisone dose can be a delicate balancing act. When lower doses are needed, patients are often advised to split tablets, but this can present practical challenges, including difficulties achieving accurate dosing and concerns about consistency.
22 December 2025
Minister Ashley Dalton who is responsible for rare diseases in Westminster, confirmed that the framework will now continue until 2027.
1 December 2025
Due to the overwhelming response to Zöe Defoe’s (Anglia Ruskin University (ARU)) initial research, she is now offering another opportunity for people with Addison’s disease to have their voices heard.
13 November 2025
Aldons Chua, an Endocrine Clinical Nurse Specialist and researcher, shares the findings of a study exploring the factors that influence how people with adrenal insufficiency manage an adrenal crisis. The research highlights the challenges, barriers and support systems that affect self-management, helping to improve future education, treatment and patient safety.
21 August 2025
The ADSHG was proud to support an Adrenal Insufficiency Study Day at University Hospital Wales (UHW) in Cardiff, helping to educate junior doctors and nurses about the identification and management of adrenal insufficiency. The event combined clinical education, patient experience and practical resources to improve awareness and patient care.
29 July 2025
In this personal story, Rachel reflects on her journey from diagnosis to qualification as a doctor, the lessons she has learned as both a patient and healthcare professional, and her hopes for the future as she begins treatment with a cortisol infusion pump. Her story is a powerful reminder that having Addison's disease does not define what you can achieve.
7 October 2024
Following a review by the Association of Ambulance Chief Executives (AACE), ambulance services are moving away from using ‘Red Flags’ for people with steroid dependency. This update explains what the change means, how Summary Care Records can support emergency care, and the practical steps you can take to stay safe during an adrenal crisis.
11 September 2024
The National Institute for Health and Care Excellence (NICE) has published its first national guidance for the identification and management of adrenal insufficiency. The new recommendations aim to improve patient safety, strengthen adrenal crisis prevention, and ensure better access to emergency injection kits, steroid emergency cards and appropriate treatment.
27 August 2024
What difference do steroid emergency cards and perioperative guidelines make in real-world clinical care? Researcher Louise Breen shares findings that could help improve safety and outcomes for people living with adrenal insufficiency
26 March 2024